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Le monde de Camille

  • Presentation
    • Les premières années
    • The school
    • Rehabilitation
    • At home
    • Hobbies
    • Family and foreign relations
    • Friends
    • Difficulties
    • Technical aids
  • Alternative communication and educational strategies
    • PECS – Image exchange communication system
    • Makaton
    • Sign language
    • Verbo-tonal method
    • ABA – Applied Behavior Analysis
    • TEACCH
  • Our experience
    • Communication
    • Time / space structuring
    • Games
  • Daily
    • Work or not?
    • Relations with the administration

et celui des d’autres enfants

  • En France
    • Amine
    • Aymeric
    • Blanche
    • Caroline
    • Chloé
    • Christophe
    • Clara
    • Cécile
    • Eliott
    • Eleonore
    • Emilie
    • Emma
    • Evane
    • Florence
    • François
    • Jules
    • Julia
    • Karla
    • Laura
    • Lena
    • Louise
    • Luz
    • Malorie
    • Manon
    • Marina
    • Marine
    • Matheo
    • Matteo
    • Maxime
    • Nathan
    • Océane
    • Paul
    • Pierre
    • Rayane
    • Sihann
    • Solène
    • Tatiana
    • Tess
    • Téhani
    • Valentin
    • Xavier
  • Et à l’étranger
    • Adam – Hungary
    • Amelie – London
    • Arthur – Belgium
    • Camille – Quebec
    • Hugo – Spain
    • Jokubas – Lithuania
    • Josefien – Netherlands
    • Lan – Slovenia
    • Lorenzo – Italy
    • Marina – Germany
    • Noor – Belgium
    • Ole Herman – Norvway
    • Sanaé – Australia
    • Tommy – Canada
    • Wendy – Belgium
    • Wylliam – Canada
    • Zaineb – Morocco

Rassemblements

  • France
    • Friday 3 June 2011
    • Thursday 9 May 2013
    • 9 and 10 may 2015
    • 7 May 2016
    • 4 September 2016
    • 24 September 2016
  • United States
    • July 25 to 28, 2012 by the 22q13 Foundation in Orlando, Florida
    • July 23 to 26, 2014 by the 22q13 Foundation in Orlando, Florida
    • 20-23 July 2016

Echanger

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Plan national maladies rares 2011-2014

//www.orpha.net/actor/Orphanews/2011/doc/Plan_national_maladies_rares.pdf

La délétion 22q13

  • Inquire
    • Deletion 22q13 / Phelan-McDermid Syndrome
    • Reference, Competence and Healthcare Centers
    • THE FRENCH SYNDROME ASSOCIATION
    • The Phelan-McDermid Syndrome Foundation
    • Article magazine Déclick on the Phelan-McDermid syndrome – Deletion 22q13
    • National Rare Diseases Plan 2011-2014
    • Rare Diseases Foundation
    • Associations
    • Fees – AEEH – PCH – Disability Card – Housing Tax
    • Legislation – News
    • Schooling
    • Autism Plan 2008-2010
  • Medical research
    • Studies
  • Documentation
    • CDRom
    • Books
    • Revue

A consulter

  • Condemnation APSA 86 (excerpts)
  • Foundation booklet
  • Raising a Child with Deletion 22q13
  • Raising a Child with 22q13 Deletion (French translation)
  • Cleanliness Sites (English)
  • Cleanliness Sites (French translation)
  • Cleanliness and Autism (French translation)
  • Relationship between gene Prosap 2 and deletion 22q13 (in French)
  • Relationship between Shank 3 and autism – Institut Pasteur- (in French)
  • Study on 33 patients: relation between the size of the deletion and the development / behavior (Me Mattéi) (in French)
  • Pain on the internet (in French)
  • Living with a rare disease in France – Orphanet Guide (in French)
  • Guide Unapéi – Living with a Different Child
  • UNIQUE booklet on deletion 22q13 (in French)
  • Article “genetics in medicine” on the relationship between autism and genetic anomalies (in French)
  • The Caregiver’s Guide

Dans les médias

  • Internet
    • Rue 89 October 24, 2011
    • Huffington Post of 14 April 2012
    • Huffington Post of 28 May 2012
    • Huffington Post of 28 February 2014
  • The press
    • La Nouvelle République of 20 May 2008
    • La Nouvelle République of 25 February 2010
    • La Nouvelle République of 1 March 2011
    • La dépêche of 3 January 2012: creation of an association to help Marina carrying the deletion
    • La Nouvelle République of 7 January 2012
    • 7 à Poitiers May 2012, hunger strike Philippe Cantet
    • “7 à Poitiers” June 2012, hunger strike
    • La Nouvelle République of 7 January 2013
    • La Nouvelle République of 6 November 2014
    • Est Républicain 26 February 2015, Karla’s world
  • TV
    • TMC Part 1: How to live your child’s illness on a daily basis – May 2011
    • TMC 2nd part

Textes choisis

  • To read
    • How do we know we have a different child?
    • The trip to Holland

Partenariat

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Règle fonctionnement

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